Friday, October 17, 2008

Surgery then Chemo

I spoke with another Surgeon at Mayo who is either a resident, or working with my Surgeon...I haven't quite figured it out. Anyway, he was in the consultation appointment when I met her and since she was out of the office until Thursday, he had been trying to help me...offered to call my Oncologist to work something out etc. He was pretty animate that Dr. Young-Fadok would not go forward with the surgery only two weeks off of chemo.

So I waited while they fought over me :) One potential solution that we had come up with was to see if they would move the surgery forward if they really weren't going to budge on two weeks...I wasn't getting my hopes up that she would have an opening in her schedule with such short notice. She did have an opening, so this is what they ended up compromising on. My surgery is set (hopefully for good this time!) for next Thursday, October 23rd. Just about 3 weeks out of my last Chemo. I'll go in on Monday for all the pre-op tests.

She'll be starting off laprascopic, and if needed it will move to traditional. We ultimately decided on going this route for the quicker recovery time, and that means I can start chemo up slightly faster if all goes well. About a foot of colon will be removed and they will just reattach to my small intestines. The average length of stay for a colon resection is about 5 days. The only real requirement to be discharged, if I understand it correctly, is breaking wind/having a bowel movement. That means any visitors should be aware in advance that I'm not holding anything in :) So really, what else is new the last three months?!

In other good news, my secondary insurance, who Mayo is a contracted provider with, will be covering more than I originally thought, so our out of pocket is going to be minimal. Hooray! Everything has just been falling into place so nicely, so it makes us think we've made the best decision to have it there. My good friend Rachel, who is a nurse at Mayo, wrote and told me that she usually gets colon resection patients on her floor post Op...I'm keeping my fingers crossed, I think that would be pretty cool :)

Its been a while since I posted a picture. Here is Justin, my juicer.



I have a lot of faith in the good nutritionists of the world, but I will admit I have not followed their advice for me very closely. Back in MN, they advised me to eat as high of fat diet so that I could to put the weight back on I had lost. I've never eatten like that and quite frankly it made me sick drinking, yes drinking, cream. I tried to add a few new higher calorie things to my diet (more ice cream!), but I think continuing our pre-cancer diet has helped me out tremendously. We're by no means perfect, we still eat out occasionally, and 100% of our food is not organic, but we really try to eat a minimal amount of meat and sugar, and lots of veggies etc etc. I've gained back about 1/2 of the weight I lost in the beginning...so I still have a little ways to go, but I feel so much better when I eat this way.

I have to send out a huge thank you to all the people who have joined the team my dad set up for the UNDY 5000, and to those of you who have donated so generously to the cause. So far as I can tell, the team is one of the top 3 fundraisers! You're amazing!! I'm glad that my surgery has been moved up so I'll have a little more time to recover before the event. I'm so excited!!

Hope you all have a great weekend. Thanks for your prayers and support!!

10 comments:

Amber said...

Yay for the insurance company paying more money! I am glad that you have been able to get everything worked out. So the insurance company will chip in for wigs huh? Anyone know who Brittany Spears used? She sure recovered from her bald stint quite nicely :-) I think you should pick one that is nice and thick-if you get to wear a wig-you might as well have a hair style you have always dreamed of right!

Gail said...

We are glad that the details are finally worked out for your surgery. We are really looking forward to the UNDY 5000! Kent can't make up his mind .... the red long johns or basic white??? It's so hard to decide!!!

Our thoughts and prayers are with you daily!
Gail and Kent

Pepper Lovin! said...

Good luck on thursday. You and justin will be in my thoughts. I love when things just 'fall nicely' into place. It makes me feel a lot better about the choices made ya know? Have a good day!

Unknown said...

Wish I could make the race. I will check to see if there is one in NYC... I remember the last race I ran in... Mr. Lambros in 5th grade took us to a 2K. I remember you helped a bunch of kids who had fallen at the start of the run... and you still kicked my butt. Stay strong!

Mike Steph Brooklyn and Carter said...

I had to laugh reading about having to pass gas before you can leave the hospital because I was under those same stipulations after my c section. They put you on an all liquid diet until you pass gas so you better believe I was thrilled when it finally happened and I could eat some real food, I paged the nurse just to let her know!
I wish I could be there for the Undy run, that would of been so fun. I think I will do a little run here in MS for you on that morning.
So glad we got to catch up, I am so glad that you are finally getting your surgery because I know you are so ready for this! We will be praying for you and love you!

Anonymous said...

Hi Susan and Justin,
I check for your blog comments almost daily. Both Jim and I send you our good thoughts and prayers for a speedy recovery from your upcoming surgery.

Here's to shrinking tumors!
Love,
Judy Rein

Anonymous said...

My prayers, as well as those of my coworkers here in NY, will be with you. I'm sure you'll be blogging again soon. You are an inspiration, and exude the positivity that I know has made the difference in some of my own family's experiences. Keep up the smile Susan!
Cathy in NY (Burke)

Anonymous said...

Sometimes you have to see "things falling into place" as the positive sign that it is! My thoughts and prayers are with you this week... that you recover quickly, that the surgeon can stay with laparoscopic surgery and have a very successful procedure, and that your system starts to function like gangbusters so that you can go home quickly. I always wondered why we weren't made with a zipper to make these things easier!

thearringtonclan said...

Hello Susan..
Just to say GOOD LUCK for the surgery and hope all goes very well...... Mathews went great and his recovery even though they ended up "cutting him open" was faster than we thought it would be.. Chin up and march forward we say and stay positive..... looking forward to seeing updates... You are in our Prayers...
Maxine and Mathew

thearringtonclan said...

Oh and by the way.. YES.. you must pass gas!!!!!!
Mathew was on the phone with me on the Sunday morning at ooh I think it was 8:32am saying HEY I JUST FLUFFED!!!!! meaning broke wind... lol lol ...He got to come home the next day...

HAPPY FLUFFING !!!!